In August 2023, the coordinated ethics procedure for the National Autopsy Registry (NAREG) was launched with 24 ethics committees initially involved. The Health Data Utilisation Act (GDNG) was passed during the ongoing process. The law represents a standardised nationwide regulation to make health data usable for research. The new law enables pseudonymised register entry without consent under certain conditions. With its positive ethics vote, NAREG is doing pioneering work and is the first register in Germany to be based on the GDNG in terms of data utilisation.
NAREG serves as the electronic backbone of the NUM infrastructure NATON.